The Gold Hope Project

The Gold Hope Project

I am part of an amazing organization. The Gold Hope Project is a group of photographers that have come together to capture the moments that your family holds so dear to their heart. Some of us have been touched by the presence of cancer, and some have not, but we have all been given a gift that we would like to share with you, completely free of charge.

These purposes include: Capturing images of any child 21 and under with a Cancer diagnosis; Educating communities in which we live about Pediatric Cancer; Support, Encourage and raise funds for Pediatric Cancer Research; Resources for families who are facing a recent diagnosis; Support community of other families who are facing similar Cancer diagnosis; and To photograph any child 21 and under with a current of past cancer diagnosis. They can be at any stages of treatment of be a childhood survivor.

More precious than the gold that represents them, children are our future. This year alone, approximately 13,500 parents will have to listen to a doctor tell them, “Your child has cancer.” Can you imagine?

Meet Luke & Molly.

Luke & Molly who are siblings, are both Fighters against Myelodysplastic Syndrome (MDS)/Monosomy 7. Luke was diagnosed with Myelodysplastic Syndrome (MDS)/Monosomy 7 when he was 8 1/2 months old. He went through chemotherapy followed by a bone marrow transplant on 4/12/06. He has battled some side affects since due to his treatment, but is doing well. Molly was diagnosed with Myelodysplastic Syndrome/ Monosomy 7 (MDS) May 2010, yes, this is the same cancer her brother Luke was diagnosed with in April 2006! Although their family has been on this cancer roller-coaster before, it’s not one that you want to repeat and still can’t believe they are doing it with a different child.

Luke is 7 and in the 2nd grade. He is all boy. Loves anything with wheels and motors–trucks, tractors, 4wheelers, monster trucks, dirt bikes, boats, planes, etc. Also enjoys sports (plays baseball, basketball, soccer and golf), Lego’s, playing outside and camping.

Molly is 4 and in preschool. She is very much a girly girl. She LOVES to dance and sing. She wears dresses and skirts everyday. Enjoys playing dress up, make up, barbies, watching movies.

Many people are wondering how her parents decided to have Molly tested because she seems and looks so healthy. She has been healthy and is always happy. Her Mom had noticed some bruising over the last 2 months, so she waited for her 2 year check up to have her blood counts looked at. (didn’t want to seem like the crazy cancer mom and bring a 2 year old in for testing because of bruising!) Their doctor is wonderful and ordered the labs right away even though she had no bruising that week. So, there really wasn’t a reason to have her tested other than her Mom knew something wasn’t right. Unfortunately, her suspicions were confirmed. Their parents took her right to the U of M and Molly was diagnosed with MDS/monosomy 7 on May 26, 2010. All the doctors have been pretty shocked, as well as their family, that they have another child with this horrible disease. They found out there are only about 20-30 families with siblings with this. They have consented to testing through the U of California San Francisco to see if the kids carry a genetic link. It will take some time to get these results back, and if they do, further testing will be needed. Their first priority is to get Molly better. After visits 3 times a week in June to have labs and a white shot booster, Molly went through the bone marrow transplant work up at the end of June and was admitted to U of M Children’s Hospital on July 2, 2010 for 10 days of radiation/chemo before having a bone marrow transplant on July 12, 2010.

Photos taken by: Sarah Edgar of Sarah Edgar Photography.

Leave a Comment

Your email address will not be published. Required fields are marked *